11088632_911128728945409_7723074420742049807_oSpecial thanks to Patrick Kaleta who made our buddy Matthew’s night

There are a great many worthwhile causes in need of your support, and we at the Spinal Muscular Atrophy Research Team (SMART) would like to encourage you to become a SMART supporter – consider it the SMART thing to do!

What is Spinal Muscular Atrophy (SMA)? 
SMA is a genetic, degenerative neuromuscular disease that debilitates muscle function.  It is the #1 genetic cause of death in children less than 2 years old.  1 in 35 people carry a copy of the gene that causes SMA.  There is no cure and no current treatments.

What is SMART and its mission? 
SMART is a grass roots organization started in 2009 to raise awareness and funds for research aimed at finding a cure for SMA & related diseases.  Our mission is one of HOPE for a better life, new treatments and ultimately a cure for those affected by SMA.

How does SMART work? 
SMART is an all volunteer organization of friends & family, no team members are compensated.  SMART is primarily funded by individual contributions & through the support of organizations such as our presenting sponsor The Buffalo Professional Firefighters Association Local 282.

What does SMART fund? 
SMART research grants have helped fund ground-breaking research of renowned SMA investigators at Johns-Hopkins University, Northwestern University & University at Rochester.

How can you be a part of SMART’s mission?
The 8th Annual SMART Celebration is scheduled for Saturday, August 6, 2016 1-6pm at First Niagara Center – Home of the Buffalo Sabres Previous events have attracted upwards of 1,000 people.  We have several sponsorship opportunities available surrounding our event.

Importantly, SMART is a recognized non-profit 501c organization (Tax Id # 32-0284955), which means that all donations are tax deductibleCLICK HERE to Sponsor/Donate.

 Remember that together, we will find a cure!

Smart FNC 2015


SMART Has a 501c status(Tax ID# 32-0284955) making all donations tax deductible. SMART does not solicit by telephone!!